Legislature(2021 - 2022)DAVIS 106

03/03/2022 03:00 PM House HEALTH & SOCIAL SERVICES

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* first hearing in first committee of referral
+ teleconferenced
= bill was previously heard/scheduled
+= HSCR 2 DISAPPROVING EXECUTIVE ORDER 121 TELECONFERENCED
<Bill Hearing Canceled>
-- Testimony <Invitation Only> --
+= HB 265 HEALTH CARE SERVICES BY TELEHEALTH TELECONFERENCED
Heard & Held
-- Invited & Public Testimony --
*+ HB 292 HOME AND COMMUNITY-BASED WAIVER SERVICES TELECONFERENCED
Heard & Held
-- Testimony <Invitation Only> --
+ Consideration of Governor’s Appointees: State TELECONFERENCED
Medical Board; Mental Health Trust Authority -
Kevin Fimon
-- Invited & Public Testimony --
+ Bills Previously Heard/Scheduled TELECONFERENCED
        HB 292-HOME AND COMMUNITY-BASED WAIVER SERVICES                                                                     
                                                                                                                                
4:15:02 PM                                                                                                                    
                                                                                                                                
CO-CHAIR  ZULKOSKY announced  that  the final  order of  business                                                               
would  be HOUSE  BILL  NO.  292, "An  Act  relating  to home  and                                                               
community-based services; and providing for an effective date."                                                                 
                                                                                                                                
4:15:41 PM                                                                                                                    
                                                                                                                                
CO-CHAIR  SNYDER,  as  prime  sponsor, presented  HB  292.    She                                                               
explained that the proposed legislation  is needed because of the                                                               
demand for  in-home, long-term  services and  associated support.                                                               
She  stated that  stakeholders have  reported service  level cuts                                                               
for  seniors, people  with disabilities,  and  those who  receive                                                               
Home and  Community-Based Services  (HCBS) waivers  and Community                                                               
First  Choice Medicaid  State  Plan  K.   She  stated that  these                                                               
people are  facing barriers to  services, such as  long waitlists                                                               
and the inability to obtain  the personal care assistant (PCA) of                                                               
their  choice.   She  observed that  caregivers  have seen  fewer                                                               
hours and lower  pay over the last decade.   She noted that rural                                                               
communities  have   been  impacted   by  the  lack   of  homecare                                                               
infrastructure.    Because  homecare  is the  only  option  which                                                               
allows  these individuals  to stay  in  their rural  communities,                                                               
many Alaskans  are forced to  move away, denying them  the option                                                               
of maintaining dignity and independence.                                                                                        
                                                                                                                                
CO-CHAIR  SNYDER stated  that the  proposed legislation  outlines                                                               
the following issues: declining wages  of PCAs; the impact on the                                                               
mostly female  workforce; longer time spent  on waitlists; budget                                                               
cuts; service level  reductions; and the over  reliance on unpaid                                                               
care.   She  stated that  despite the  growing need  for personal                                                               
care  services,  services  decreased  from 2016  to  2020  by  23                                                               
percent.  These cuts have  left individuals reliant on the unpaid                                                               
labor of  untrained friends and  family, costing the  state money                                                               
in terms  of economic productivity.   She expressed  hesitancy in                                                               
reducing quality of life issues to  economics, but "it is our job                                                               
as legislators."                                                                                                                
                                                                                                                                
4:21:09 PM                                                                                                                    
                                                                                                                                
CO-CHAIR  SNYDER explained  that HB  292 would  begin to  help by                                                               
preventing   unwanted  service-level   cuts  for   personal  care                                                               
services  by  fixing  the  weak  points  in  the  statute.    She                                                               
explained  that   assessments  which  result  in   service  level                                                               
reductions  would be  required to  go through  the same  detailed                                                               
process for service level terminations.   She added that previous                                                               
service  level  cuts would  be  restored  from 2019  to  present.                                                               
Finally,  she  stated  the   proposed  legislation  would  permit                                                               
legally  responsible  individuals  to   become  PCAs  under  HCBS                                                               
waivers  and Medicaid  State  Plan  K.   She  concluded with  the                                                               
example of  a constituent who  would be impacted by  the proposed                                                               
legislation.   She  described the  individual as  having cerebral                                                               
palsy and using  a wheelchair.  The individual  recently moved to                                                               
Anchorage for  better access to  PCAs, but in the  8-month search                                                               
one has  not been found.   It has not been  economically feasible                                                               
for the family  to travel back and forth to  Anchorage to provide                                                               
care while  working to  support themselves.   Recently  the hours                                                               
allocated  for the  individual to  have homecare  were cut.   She                                                               
described  the situation  as  "a negative  feedback  loop."   She                                                               
maintained that HB 292 would begin to address these issues.                                                                     
                                                                                                                                
4:25:11 PM                                                                                                                    
                                                                                                                                
ALLIANA  SALANGUIT,  Staff,  Representative  Liz  Snyder,  Alaska                                                               
State  Legislature, on  behalf  of  Representative Snyder,  prime                                                               
sponsor, paraphrased  the sectional analysis of  HB 292 [included                                                               
in  the  committee  packet],  which  read  as  follows  [original                                                               
punctuation provided]:                                                                                                          
                                                                                                                                
     Sec.  1: Amends  AS  47.07.045(a)  Home and  community-                                                                    
     based services  for provisions in the  section to apply                                                                    
     also to  Community First  Choice and  Medicaid personal                                                                    
     care services programs.                                                                                                    
                                                                                                                                
     Sec.  2: Amends  AS  47.07.045(a)  Home and  community-                                                                    
     based services by:                                                                                                         
            Introducing  a process  in statute  for reducing                                                                    
          hours  or  payment  for home  and  community-based                                                                    
          services provided under  1915(k) state plan option                                                                    
          and Medicaid  personal care services  that mirrors                                                                    
          the process for terminating services.                                                                                 
          • Adding  "and live independently" as  a condition                                                                    
          for terminating services.                                                                                             
          • Requiring  the department to  continue following                                                                    
          notice requirements provided in later sections.                                                                       
                                                                                                                                
MS. SALANGUIT  specified that  the requirements  for notification                                                               
indicated  in  Section 2  are  further  laid  out in  Section  8.                                                               
Passing  ahead, she  paraphrased from  Section 8,  which read  as                                                               
follows [original punctuation provided]:                                                                                        
                                                                                                                                
     Sec. 8: Establishes the act  will take effect only upon                                                                    
     federal  approval   of  the  state  plan   for  medical                                                                    
     assistance, and  that if approved, the  Commissioner of                                                                    
     the  Department  of  Health and  Social  Services  must                                                                    
     notify the  revisor of statute  not later than  30 days                                                                    
     after receiving notice.                                                                                                    
                                                                                                                                
MS. SALANGUIT, picking up at Section 3, continued paraphrasing                                                                  
the remaining sectional analysis, which read as follows                                                                         
[original punctuation provided]:                                                                                                
                                                                                                                                
     Sec.  3: Amends  AS  47.07.045(d)  Home and  community-                                                                    
     based services by:                                                                                                         
          • Moving definitions for "independent qualified                                                                       
          health   care   professional"   and   "independent                                                                    
          qualified  waiver" to  this section.  It does  not                                                                    
          create any new definitions.                                                                                           
                "Independent    qualified     health    care                                                                    
          professional"     for    an     intellectual    or                                                                    
          developmental  disability waiver  is defined  as a                                                                    
          qualified  intellectual   disability  professional                                                                    
          under 42 C.F.R. 483.430.                                                                                              
          •  For   other  allowable   waivers,  "Independent                                                                    
          health care  professional" is defined as  a person                                                                    
          who can  provide personal care services  under the                                                                    
          1915(k)  state plan  or  a  registered nurse  with                                                                    
          specific qualifications relevant to the waivers.                                                                      
                                                                                                                                
     Sec. 4: Adds a new  subsection to AS 47.07.045 Home and                                                                    
     community-based services that:                                                                                             
          •  Establishes that  once the  department receives                                                                    
          the results of an assessment  they have 10 days to                                                                    
          notify, in writing,  the recipients or individuals                                                                    
          with  legal authority  to act  on the  recipient's                                                                    
          behalf of the assessment results.                                                                                     
          •  Establishes that  after the  department decides                                                                    
          if there  will be a  change in levels  of services                                                                    
          or payments for services,  they have 10 days after                                                                    
          the decision  is made to  notify the  recipient or                                                                    
          individuals  with legal  authority to  act on  the                                                                    
          recipient's  behalf of  the decision.  This notice                                                                    
          must be  done in  writing and  30 days  before the                                                                    
          new   determination   goes    into   effect.   The                                                                    
          department  must  also  inform them  they  have  a                                                                    
          right to appeal the decision.                                                                                         
          •  Allows legally  responsible persons  to provide                                                                    
          personal care  services to an  individual eligible                                                                    
          for home and  community-based services waivers and                                                                    
          Community First Choice.                                                                                               
                                                                                                                                
     Sec.  5: Adds  a new  section that  creates a  path for                                                                    
     hours to be restored  through the proposed reassessment                                                                    
     process  for  recipients  of  care  whose  payment  for                                                                    
     services  were  reduced  between January  1,  2019  and                                                                    
     January 1, 2022.                                                                                                           
                                                                                                                                
     Sec. 6: Adds  a new section to  instruct the Department                                                                    
     of Health  and Social  Services to  amend and  submit a                                                                    
     state  plan for  medical  services to  the Centers  for                                                                    
     Medicare and Medicaid Services (CMS).                                                                                      
                                                                                                                                
     Sec.  7:  Makes section  5  retroactive  to January  1,                                                                    
     2019.                                                                                                                      
                                                                                                                                
     Sec. 9-10: Create two effective dates:                                                                                     
          • For sections  1   4, effective date  will be the                                                                    
          day  after   the  revisor  of   statutes  receives                                                                    
          notification from  the Commissioner of  Health and                                                                    
          Social Services of federal  approval of state plan                                                                    
          amendments.                                                                                                           
        • Sections 5 and 7 take effect immediately upon                                                                         
          passage                                                                                                               
                                                                                                                                
4:29:50 PM                                                                                                                    
                                                                                                                                
KATHERINE BACON, representing self, stated  that she had been the                                                               
primary caregiver  for her medically fragile  granddaughter.  She                                                               
stated that her  family had had no experience  with special needs                                                               
individuals,  "but we  learned."   Her  granddaughter  is now  24                                                               
years old.   She continued that beginning in 2003  she became the                                                               
primary caregiver to her late  husband suffering with Alzheimer's                                                               
disease.   Now  she is  the primary  caregiver [to  his grandson,                                                               
Michael].  He  had a traumatic brain injury when  he was 3 months                                                               
old, which resulted in multiple  lifelong issues.  Even though he                                                               
was not  expected to  live, she  said he would  soon be  30 years                                                               
old.   She shared that  over the years  she has hired  and worked                                                               
"alongside  more caregivers  than I  can count."   She  indicated                                                               
that  she  does  not  blame   the  caregivers,  as  they  receive                                                               
inadequate pay  and too  few hours.   She stated  that caregivers                                                               
often have  to "cobble together" full-time  schedules by juggling                                                               
multiple  clients or  taking other  jobs, and  then, often,  they                                                               
leave  to take  better  jobs.   The  caregivers  who stay  cannot                                                               
provide  sufficient  care  because   they  are  overburdened  and                                                               
exhausted.   She stated that the  needs of individuals do  not go                                                               
away when  hours are cut  or caregivers  are not available.   She                                                               
explained that she is now  Michael's sole care provider, 24 hours                                                               
a day, 7 days  a week.  She is fortunate she is  paid to care for                                                               
Michael, but the process for  families to be qualified to receive                                                               
care  services, let  alone to  be paid,  is long  and hard.   She                                                               
argued that  the people who  know and love the  individual should                                                               
be able  to care for them.   She expressed the  opinion that many                                                               
caregivers struggle,  and there  is a  "breaking point,"  and the                                                               
proposed  legislation would  take the  first step  to repair  the                                                               
broken system by reducing barriers  for vulnerable Alaskans.  She                                                               
thanked the bill sponsor.                                                                                                       
                                                                                                                                
4:35:14 PM                                                                                                                    
                                                                                                                                
MS.  BACON, in  response to  Representative Spohnholz,  explained                                                               
that the process  for her to be Michael's caregiver  was not hard                                                               
because she is not biologically  related to him; otherwise, there                                                               
are many  steps, and it takes  months.  She stated  that once the                                                               
process seems to  be final, there will be "another  whole list of                                                               
hoops."    She  added  that   she  knows  people  who  have  been                                                               
disheartened  and gave  up.   She expressed  the opinion  that it                                                               
would  be  better for  individuals  to  be  at home  with  family                                                               
[caregivers] as opposed to hiring  people who may not "have their                                                               
heart in it."   She suggested [caregivers may not  be invested in                                                               
their clients] because of the low pay.                                                                                          
                                                                                                                                
4:37:20 PM                                                                                                                    
                                                                                                                                
The committee took a brief at-ease at 4:37 p.m.                                                                                 
                                                                                                                                
4:37:29 PM                                                                                                                    
                                                                                                                                
LEIONILEI  JOHNSON, representing  self,  spoke in  support of  HB
292.    She  stated  that  she  is  a  professional  home  health                                                               
provider.  She  shared that she is Tlingit and  an Eagle from the                                                               
Thunderbird Clan.   She said when  she was a young  girl, she had                                                               
helped her mother  care for her grandmother.   Without their help                                                               
her grandmother had no way  to buy groceries, keep herself clean,                                                               
and take  care of her home.   She expressed pride  in her ability                                                               
to help.   She stated that she has been  a professional caregiver                                                               
for 10  years and has witnessed  hours cut for client  care, even                                                               
for those  who cannot  get out  of bed.   In example,  she shared                                                               
that  a client  with Parkinson's  disease needed  help with  many                                                               
things.   The client  fell when  left alone,  but the  state only                                                               
approved  15 hours  of care  a  week.   She stated  that she  was                                                               
worried, and the  client was upset.  After being  in the hospital                                                               
with a broken  hip, the client's home was lost,  and she lost her                                                               
job.    Against  her  convictions,  she  said,  she  applied  for                                                               
government  assistance.   Working in  a different  job, she  said                                                               
that she "made more money as  a food runner in a restaurant" than                                                               
she made  as a professional  caregiver.  She said  the restaurant                                                               
job  had been  seasonal, and  she became  unemployed again.   She                                                               
stated she  is doing her  best to  help elders in  the community,                                                               
but  the  system "is  broken  and  it's  hurting  us all."    She                                                               
asserted that restoring cut hours  would help clients be safe and                                                               
help caregivers make a living.                                                                                                  
                                                                                                                                
4:42:47 PM                                                                                                                    
                                                                                                                                
AMANDA COLLINS,  representing self, spoke  in support of  HB 292.                                                               
She shared that  she is a single mother and  has been a caregiver                                                               
for  her  10-year-old child  with  disabilities  for the  child's                                                               
entire  life.    She  stated that  her  daughter's  condition  is                                                               
complex, with  many challenges, and  she lost her job  because of                                                               
the needed  full-time care.   She indicated that she  had applied                                                               
for government  assistance, and her daughter  was deemed eligible                                                               
for  services, but  the list  had  been so  long the  application                                                               
expired before services  could be received.  She  stated that she                                                               
has  had to  reapply multiple  times, but  they still  receive no                                                               
services.    She expressed  the  opinion  that  she is  the  most                                                               
qualified  person  to   take  care  of  her   daughter,  but  the                                                               
circumstances weigh  heavily emotionally,  financially, mentally,                                                               
and  spiritually  because  she  is totally  dependent  on  social                                                               
services for  the basics to survive  "day to day."   She said, "I                                                               
would love  more than anything to  be able to work  and provide a                                                               
stable income," but this is  impossible because of her daughter's                                                               
24-hour care.   She argued  that HB  292 would help  by providing                                                               
pay  to  caregivers for  the  work  they are  already  selflessly                                                               
doing.    She stated  it  would  give her  a  chance  to be  less                                                               
dependent on  public assistance and  an opportunity "not  only to                                                               
survive, but to thrive."                                                                                                        
                                                                                                                                
4:46:03 PM                                                                                                                    
                                                                                                                                
ALEXIS  RODICH, Lobbyist,  Service Employees  International Union                                                               
(SEIU)  775,  stated that  over  the  last  year SEIU  has  spent                                                               
significant  time with  caregivers  in Alaska,  speaking to  them                                                               
about  their experiences  in making  ends meet  while "doing  the                                                               
work  they love."   She  stated that  these caregivers  are often                                                               
women,  people of  color, and  from immigrant  communities.   She                                                               
cited that,  while inflation is up,  the wages of PCAs  in Alaska                                                               
are lower  than they were  a decade ago.   She opined  that wages                                                               
are   higher  for   jobs  which   have  far   less  pressure   or                                                               
consequences,  yet "their  love  for the  work" makes  caregivers                                                               
want to stay  in the profession.  She said  caregivers often take                                                               
on two or  three jobs, or they are forced  out of the profession,                                                               
which makes  it much  harder for those  looking for  a caregiver.                                                               
She  cited that  while  pervasive budget  cuts  have resulted  in                                                               
reductions  in personal  care services,  Alaska  has the  fastest                                                               
growing  senior  population  per  capita in  the  country.    She                                                               
reiterated that when caregiver's hours  are cut the need does not                                                               
go away;  friends and family  end up providing unpaid  labor, and                                                               
individuals are  put in situations  which could result  in injury                                                               
or  hospitalization.   She stated  that HB  292 would  create the                                                               
initial steps to  ensure those who need services  and support are                                                               
getting the  level of  care they need,  allowing for  dignity and                                                               
independence in  their own homes.   It would also  give stability                                                               
to caregivers  providing these  services.   She thanked  the bill                                                               
sponsor and the committee.                                                                                                      
                                                                                                                                
4:50:11 PM                                                                                                                    
                                                                                                                                
JOHN  LEE,   Director,  Division   of  Senior   and  Disabilities                                                               
Services, Department  of Health and Social  Services, in response                                                               
to Representative Prax, explained  that PCA certification depends                                                               
on  the agency  and  its requirements.    The basic  requirements                                                               
would  be  passing  a  background  check,  completing  first  aid                                                               
training, and  completing training  related to the  skills needed                                                               
for  the  client.    He   said  there  are  various  requirements                                                               
depending on whether  the individual will be  supporting a client                                                               
on a waiver program or a state plan.                                                                                            
                                                                                                                                
REPRESENTATIVE  PRAX, repeating  the  question  for Ms.  Johnson,                                                               
stated that  he is  trying to understand  the effort  required to                                                               
obtain certification.                                                                                                           
                                                                                                                                
4:53:54 PM                                                                                                                    
                                                                                                                                
MS.  JOHNSON explained  it  depends on  the  client because  each                                                               
client would require a certain type  of care.  She stated that an                                                               
individual would need a background  check, certification in first                                                               
aid, and whatever training the company requires.                                                                                
                                                                                                                                
REPRESENTATIVE PRAX questioned whether  the requirements would be                                                               
determined by the employer or prescribed by regulation.                                                                         
                                                                                                                                
MS. JOHNSON responded  that in her training she  was certified to                                                               
use  a belt  around the  waist for  helping the  client move,  to                                                               
change the  bed if the  client is bedridden, to  use a lift  on a                                                               
client, to bathe  and clothe a client, and to  use a feeding tube                                                               
and  catheter.    She  stated   that  a  nurse  would  administer                                                               
medication, and a physical therapist would work with the client.                                                                
                                                                                                                                
4:56:39 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE FIELDS  voiced an observation that  there has been                                                               
a net migration  out of the state, which is  a negative thing for                                                               
the  economy.    He  stated   that  he  has  observed  an  entire                                                               
multigenerational  family  leave  the  state  because  they  were                                                               
unable to find  care for an elderly family member.   He expressed                                                               
the opinion that keeping multigenerational  families in the state                                                               
would  be  good  from  a   humane  perspective  and  an  economic                                                               
perspective.   He commented that the  fiscal note on the  bill is                                                               
"tiny," and  it is a small  price to pay for  supporting families                                                               
in the state.                                                                                                                   
                                                                                                                                
4:57:45 PM                                                                                                                    
                                                                                                                                
CO-CHAIR ZULKOSKY announced that HB 292 was held over.                                                                          

Document Name Date/Time Subjects
CS HB 265 v N 03.01.22.pdf HHSS 3/3/2022 3:00:00 PM
HB 265
CS HB 265 v N Summary of Changes 03.02.22.pdf HHSS 3/3/2022 3:00:00 PM
HB 265
HB 265 Testimony - Received as of 03.02.22 - 1.pdf HHSS 3/3/2022 3:00:00 PM
HB 265
HB 265 Testimony - Received as of 03.02.22 - 2.pdf HHSS 3/3/2022 3:00:00 PM
HB 265
HB 265 Testimony - Received as of 03.02.22 - 3.pdf HHSS 3/3/2022 3:00:00 PM
HB 265
HB 265 Presentation 02.16.22.pdf HHSS 3/3/2022 3:00:00 PM
HB 265
HB 292, Sponsor Statement, Ver. A.pdf HHSS 3/3/2022 3:00:00 PM
HB 292
HB 292, Sectional Analysis.pdf HHSS 3/3/2022 3:00:00 PM
HB 292
HB0292A.PDF HHSS 3/3/2022 3:00:00 PM
HB 292
Kevin Fimon Resume 2021 AMHTA_Redacted.pdf HHSS 3/3/2022 3:00:00 PM
Gov Appointee to Mental Health Trust Authority